Before we had Leo, a couple of our friends managed to convince us that taking a nearly 3 month old baby on a skiing holiday was a GREAT idea…so we booked a week in the snow at the end of March…Read More
You are the strongest person I know.
So many people have said that to me over the last 3 months and my initial response was “well, I’m not sure about that, but if I’m strong it’s becauseI have to be.” But I’ve since realised that I am strong and I am courageous.Read More
1 in 4. Those are our chances of having a baby with NKH.
Nonketotic hyperglycinemia, or NKH, is a very rare genetic disorder, caused by a defect in a child’s genetic coding which means that they can’t break down Glycine. Glycine is an amino acid that is found naturally in our bodies and we need it to grow and develop properly, but when it’s not broken down and accumulates, it effectively becomes poisonous. The result is severe disruption to movement and development, brain damage, seizures and muscle weakness. Children with NKH tend not reach milestones past those reached by a regular 6-week-old infant. It’s not pretty. It’s terminal and currently there’s no cure.Read More
I can’t tell anyone how to cope with baby loss - everyone’s different and there’s no right or wrong way - and there’s also no right or wrong way to help someone through baby loss. You just have to be there. Even in silence, just being there is helping.Read More
Most places I looked when I first lost Leo wanted me to drown in misery. They told me it was ok to stay in bed for a week and cry. But I didn’t want to do that. That’s just not me. Of course I cried and I still cry….but I also wanted to live my life and do Leo proud by being happy. I told him in the hospital that I promised not to drown in self-pity and that I would get dressed and look presentable every day - I would be the young, fun Mum I’d dreamt of being.Read More
Our day exploring the Golden Circle was the only sunny day we had in Iceland. When we woke up on the second day, clouds had rolled in and the wind had started to howl. We were warned that a storm was on it’s way and decided to cancel our glacier tour (having both done one previously in New Zealand, and given our lack of preparation in terms of clothing, this ended up being a very good call!)Read More